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2013 Annual Conference

We constantly strive to be responsible environmental stewards. As handouts for presentations are provided by our speakers, they will become accessible online here before, during and after the program on this page. If you wish to have physical copies with you, print the materials you want before the conference; there will be no onsite handouts in Providence.

All presentations are for personal use by members only; copyright is retained by the authors and presenters, and copies cannot be distributed or made without express permission of the original copyright holder. By downloading any of the presentations, you automatically agree to these terms. This page was last updated: October 25, 2013.

To download a presentation file to your computer, right-click or control-click the bulleted links and choose save from the menu that pops up. To view the PDF documents, simply click the link.

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Foot and Ankle Issues in Collagen Disorders
Patrick Agnew, DPM
Psychiatric Misdiagnosis in Pediatric Pain Problems
Richard Barnum, MD
Management of Pain in EDS
Pradeep Chopra, MD
Pregnancy and EDS
Joseph M. Ernest, MD
Ehlers-Danlos Syndrome Update 2013
Clair A. Francomano, MD
What should we call our syndrome?
Rodney Grahame, CBE, MD, FRCP, FACP
A Unique Pain Management Treatment for EDS Patients: Manual Therapy Approach
Michael P. Healy, PT, DPT, DOMTP, CSN, CPT, MBA
The D-Lightful Vitamin D: A Solution for Good Health
Michael F. Holick, PhD, MD
Applying for Disability
Kathleen Kane, JD
Hip Pointers and Shoulder Tips
Howard P. Levy, MD, PhD
Temporomandibular Joint and Cervicogenic Dysfunction in the EDS Patient
John Mitakides, DDS, FAACP
Sacroiliac Joint Dysfunction with People Diagnosed with EDS
Kevin Muldowney, PT
Non-Restorative Sleep in EDS: A Manifestation of Autonomic Dysfunction
Alan Pocinki, MD
Botanical Medicine and Dietary Interventions to Alleviate Pain and Inflammation
Abbas Qutab, MBBS, DC, PhD, OMD
Ehlers-Danlos Syndrome
Jon Trister, MD and Renata Trister, DO
Better Together: Growing Empowered Support Groups and Educated Communities
Shani Weber, MS and Heather Butler-Pierce, MEd

Creating Knowledge
Building Community
Promoting Change