In Memoriam

Losing a friend or family member can be devastating, and when that loss is a result of EDS it is especially tough. At The Ehlers Danlos Society we believe that our community is our strength and our love and support of each other will help us recover from these painful losses. It is important for all of us that we share and celebrate the life lived by recognizing and honoring the importance of that person’s life.

The Ehlers Danlos Society will publish any obituary or memorial article about a member of our community who has passed on. Please send your memorial in Word format to the staff e-mail. The article will remain posted for at least seven (7) days and will be visible to all guests. At this time we cannot offer the opportunity to add a photo so please send text only.

Federal tax laws prohibit EDNF from soliciting for or donating to any other entity, and doing so would jeopardize our 501(c)3 status and our ability to raise funds at all. If it is your wish to have donations made in memory of your loved one in the obituary you send to The Ehlers Danlos Society, they must be for The Ehlers Danlos Society. If other donation information is included with the obituary, it will be removed before it is published here or anywhere on this web site.