Awareness Efforts

By leading the search for knowledge about EDS we are building a community of people who work together to effect change.  This is the vision of EDNF.  Working together to effect change happens by working together to raise awareness.

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Contact the Ellen DeGeneres Show - Let our voices be heard! 2624
Running for EDS 986
Pain Management Medical Resource Guide 16822
Ophthalmology Medical Resource Guide 9512
Dentistry Medical Resource Guide 10921
2010 Medical Resource Guide 10494
Coalition of Heritable Disorders of Connective Tissue 2012 Senate Testimony 1534
Illinois Proclaims May EDS Awareness Month 1144
New Jersey Governor Proclaims May To Be EDS Awareness Month 1273
Rare Disease Day at NIH presents latest research from various agencies and advocacy groups 1622
TAD Coalition Exhibits at American College of Emergency Physicians Conference 936
2007 Medical Resource Guide 5618
Public Service Announcements 12048
FDA Seeks Consumer Representatives for Advisory Committees 1159
EDNF Accomplishments Since 2006 7016
"Ehlers-Danlos Syndrome Awareness Week" in the State of Rhode Island 1568
EDS Awareness in Texas 1762
Invisible 2194
Awareness Month Activities List 7159
EDNF Advocacy and Awareness: AWARENESS MONTH 1646
Colgate's Lift for Life benefit for the Ehlers-Danlos National Foundation 1358
Advocacy Action Requests 6452
EDS AWARENESS 2125
Media Communications Guide 2213
EDS Political Awareness 2288
May is EDS Awareness Month - Get Involved! 2734
National EDS Awareness Month Press Release 3116
 
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