Awareness Efforts

By leading the search for knowledge about EDS we are building a community of people who work together to effect change.  This is the vision of EDNF.  Working together to effect change happens by working together to raise awareness.

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Contact the Ellen DeGeneres Show - Let our voices be heard! 2626
Running for EDS 994
Pain Management Medical Resource Guide 16862
Ophthalmology Medical Resource Guide 9536
Dentistry Medical Resource Guide 10942
2010 Medical Resource Guide 10526
Coalition of Heritable Disorders of Connective Tissue 2012 Senate Testimony 1539
Illinois Proclaims May EDS Awareness Month 1147
New Jersey Governor Proclaims May To Be EDS Awareness Month 1278
Rare Disease Day at NIH presents latest research from various agencies and advocacy groups 1628
TAD Coalition Exhibits at American College of Emergency Physicians Conference 936
2007 Medical Resource Guide 5623
Public Service Announcements 12066
FDA Seeks Consumer Representatives for Advisory Committees 1160
EDNF Accomplishments Since 2006 7020
"Ehlers-Danlos Syndrome Awareness Week" in the State of Rhode Island 1574
EDS Awareness in Texas 1768
Invisible 2202
Awareness Month Activities List 7178
EDNF Advocacy and Awareness: AWARENESS MONTH 1647
Colgate's Lift for Life benefit for the Ehlers-Danlos National Foundation 1358
Advocacy Action Requests 6460
EDS AWARENESS 2125
Media Communications Guide 2214
EDS Political Awareness 2289
May is EDS Awareness Month - Get Involved! 2735
National EDS Awareness Month Press Release 3119
 
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