About EDNF
This section contains information about Ehlers-Danlos National Foundation (EDNF). Here you can find answers to questions like "What is the EDNF?" and "Why join the EDNF?" as well as information about the EDNF's local groups, board of directors, professional advisory council and finances.
  • Awareness Efforts  ( 27 items )

    By leading the search for knowledge about EDS we are building a community of people who work together to effect change.  This is the vision of EDNF.  Working together to effect change happens by working together to raise awareness.

  • Contributing to Change  ( 1 items )
  • Special Projects  ( 8 items )
  • Website  ( 6 items )
  • National Office  ( 2 items )
  • About EDNF  ( 15 items )
    Information on EDNF's mission and programs.
  • Literature and Media  ( 4 items )
    Includes information about the EDNF's educational CD-ROMs, leaflets, Loose Connections, and other publications.
  • News  ( 35 items )
    Current news from EDNF.
  • Community  ( 21 items )
    Information about the EDNF community, including staff, board of directors, professional advisory council, local groups, and online member community.
  • Change  ( 11 items )
    Information on EDNF's initiatives to create change for people with EDS through membership, donations, resources, local groups, volunteering opportunities and awareness campaigns.
  • Board of Directors  ( 6 items )
    This category contains biographies of EDNF Officers and Board of Directors.