I have EDS and was just diagnosed with Chiari, is this related to EDS?
There are many Chiari patients, who also have EDS. An
added caution is needed due to the diagnosis of EDS. Chiari typically
is treated in one of two
ways: Drug management and/or surgery. With EDS, the surgical protocol
must be altered to protect connective tissue and deal with arachnoid
scarring or adhesions; also prevent cranial-cervical instability. The
surgical techniques are different, too: designed to protect fragile
tissues and prevent or minimize bleeding; and post operatively, there's
more emphasis on preventing or fixing would dehiscence. Seek out and
consult with Chiari-experts before undergoing any treatment or surgery.
It's generally not an emergency, unless you have any of the three red
flag symptoms: choking, breathing problems or drop attacks. Those
indicate more severe brainstem involvement, don't delay in seeking
treatment for them. (Grubb 2002 - Rowe er.al 1999)