Currently, there is no cure for Ehlers-Danlos
Syndrome, so medical intervention is limited to symptomatic therapy,
prophylactic measures, and counseling. Some individuals with EDS have
little disability, whereas other people can be severely handicapped.
Often, people are plagued with chronic pain. This must be treated on an
individualized basis and discussed with your primary caretakers. EDS is
generally not a disorder which causes someone to "stick out like a sore
thumb". Often individuals describe a frustration at having to restrict
various activities and trying to explain to others why. Many
individuals learn to cope with their disorder, and have the potential
to pursue countless careers, and lead a full and active life. However,
some patients are troubled by hypotonia, joint instability, and chronic
joint pain. These symptoms should be recognized and discussed, and
lifestyles, professional choices should be adapted accordingly.
EDS is a lifelong condition, some individuals may face social obstacles
related to their disorder on a daily basis. Some report living with
fears of significant and painful skin ruptures, becoming pregnant
(especially those with Vascular EDS), their condition worsening,
unemployment, physical and mental burdens, and social stigmatization's
in general. (A Health Advantage. "Ehlers-Danlos Syndrome" Java O.
Solis, MD) www.ahealthyadvantage.com