This is a question that is begging for an answer. The biggest question that arises is--if something is found does that mean that it would or should be repaired. Given the delicacy of blood vessels in people with the vascular form of EDS, the answer to this is we do not know. Would it help in predicting places most likely to be the source of trouble if you have a sudden event? Again, it is not currently known if ruptures occur at known aneurysm sites or in other areas. These are questions that need to be answered by detailed studies of people with vascular EDS. Taken from EDNF board - answered by Peter Byers, MD and Melanie Pepin, MS, CGC