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These medical sessions are planned for the afternoon on Saturday, August 2. Or you can [click here to return to the Medical Sessions List].
Migraines Give Me a Headache* * *
Leanne Burnett, MD
Do you suffer from migraines like most EDSers? Want some relief? In this session, Neurologist Leanne Burnett discusses the pathopysiology of migraines, their triggers, and treatment options. You'll learn what lifestyle choices increase the risk of having a migraine, treatment options when you have that pounding migraine, the concept of daily preventative medication for migraines, and the concept of analgesic rebound.
Saturday, August 2, 12:30pm-1:15pm
Nursing Perils and the ER* * *
Denise McGinley, RN
During this session, participants will gain heightened awareness of the unique problems facing patients with EDS, and the sometimes unusual presentations of life and /or limb-threatening illnesses. It also focuses on commonplace medical practices and/or treatment modalities that can spell disaster for EDS sufferers.
Saturday, August 2, 1:15pm-2:00pm
Laboratory Testing for EDS
Dru Leistitz, MS
Do you know for sure if you have EDS? Why is there a test for Vascular EDS but not some of the other EDS types? How do you get tested? Representing Dr. Peter Byers and his research team at the University of Washington, Dru will discuss the role of the Geneticist in the diagnosis of EDS and what tests are there for the different types.
Saturday, August 2, 1:15pm-2:00pm
EDS and Your Muscles and Joints* * *
Elizabeth Russell, MD, FACP
With her Medical Degree from Rutgers, an Internal Medicine Intership from Cornell, a Post-Doc in Biophysics and a Fellowship in Rheumatology, Dr. Russell is intimately familiar with muscles and tendons and how EDS affects them. Most importantly, she will discuss the clinical approach and treatment of muscle and tendon abnormalities.
Saturday, August 2, 2:15pm-3:00pm
Pain From a Patient's Perspective* * *
Julie Nanos, BS, Psychology
One of the most difficult things is understanding your child's pain and translating this for physicians and other medical personnel. Pulling from her degree in Psychology and from a mother's heart, Julie has written a book on Pain with innovative descriptions any child will understand. Thought provoking and beautifully illustrated, her pain descriptions might be incorporated into future textbooks. For the present she is speaking at hospitals and conferences.
Saturday, August 2, 3:15pm-4:00pm
EDS and Sleep Disturbances
Brad Tinkle, MD
Do you get a good night's sleep? Most EDS patients do not. However the body cannot heal itse;f itself if you toss and turn each night. If you suffer from stress, worry, and pain, you must go to this session.
Saturday, August 2, 3:15pm-4:00pm
Non-Surgical Treatments for Pain
John Parks Trowbridge, MD
With his medical degree from Case Western and additional studies in Diet and Nutrition and Clinical Metal Toxicology, Dr. Trowbridge continues to research, non-drug methods to treat his patients with ligament laxity. In 1990 he discovered Reconstructive Therapy; a natural and long-lasting technique that stimulates the body's own natural healing processes to 1) reconstruct stronger, thicker, more durable ligament bands that hold joints together and tendon bands that are required for muscles to move bones; 2) relieve excruciating pain; and 3) restore strength, confidence, and endurance to hypermobile patients (like those with HEDS). He is also taking one-on-one appointments so sign up early.
Saturday, August 2, 3:15pm-4:00pm
Genetic Counseling and EDS* * *
Dru Leistriz, MS
Do you know for sure if you have EDS? Why is there a test for Vascular EDS but not some of the other EDS types? How do you get tested? Representing Dr. Peter Byers and his research team at the University of Washington, Dru will discuss the role of the Genetic Counselor in the diagnosis of EDS and what tests are there for the different types. During this session, participants will gain heightened awareness of the unique problems facing patients with EDS, and the sometimes unusual presentations of life and /or limb-threatening illnesses. It also focuses on commonplace medical practices and/or treatment modalities that can spell disaster for EDS sufferers.
Saturday, August 2, 4:15pm-5:00pm
A Novel Approach to EDS
David Moskowitz, MD
If ACE is a redox sensor, as suggested by its molecular structure, then it may operate early in the pathway of hypoxic pain. Hear how ACE and generation of Angiotensin II could have profound effects on connective tissue. Although not the primary defect in EDS, the disease pathway may include ACE as a key step, thus suggesting a simple and safe treatment. This positive session gives EDS patients some hope in a world where we could use some.
Saturday, August 2, 4:15pm-5:00pm
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