Michele Darwin has been quite active and involved with many aspects of the Foundation, taking on the Kids and Teens program, and expanding it with contests, newsletters, a big section of the 2008 Conference, and much more. Her enthusiastic fundraising has obtained tremendous support and her efforts with the media have helped EDS to achieve greater awareness. She sets a great example of how much someone can do to make EDS better know, more respected and better treated.

(From the “Summer 2008” issue of Loose Connections; picture left, Michele Darwin and right, Cindy Lauren in front of The National Institutes of Health in 2008.)