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These are now largely complete. There are a small number missing for whom we had no presentation copies; we will be in touch with them in the next weeks, and they may or may not appear here later. Many thanks. All presentations are for personal use by members only; copyright is retained by the authors and presenters, and copies cannot be distributed or made without express permission of the original copyright holder. By downloading any of the presentations, you automatically agree to these terms. This page was last updated: August 5, 2011.
Presentation handouts are available in PDF. To download a presentation file to your computer, right-click or control-click the bulleted links and choose save from the menu that pops up. To view the PDF documents, simply click the link. NOTE: Web browsers, plug-ins and extensions are updated frequently, and unexpected problems can result. If you have trouble viewing or printing the PDF, download and save the PDF to your own computer or device, then read or print it through Adobe Acrobat, Reader, or your choice of programs.
Dr. Patrick Agnew
Foot and Ankle Issues In Collagen Vascular Disorders
Romina Astifidis
Joint Protection of the Hands
Dr. James H. Black
Update 2011: Progress in Management of Vascular Issues in EDS
Dr. Heidi Collins
Ehlers-Danlos Syndrome/Joint Hypermobility Syndrome: Are We Really Zebras, or Just Horses of Different Colors?
Dr. Joseph Ernest
Ehlers-Danlos Syndrome and Pregnancy 2011
Dr. Clair Francomano
Ehlers-Danlos Syndrome Update 2011: What We Know—And What We Don't Know
Dr. Rodney Grahame
EDS—A Rheumatologist's Perspective Over Four Decades
Dr. Blair P. Grubb
Postural Orthostatic Tachycardia Syndrome
Sarah Gurley-Green
PATIENT Does Not Mean Passive: Taking Control of Your Healthcare Without Illness Controlling Your Life
Dr. Frank N. H. Harrison, Jr.
Gynecological Issues in EDS
Dr. Fraser Henderson
Deformation of the Nervous System in EDS Patients
Dr. Bradley S. Hurst
Ehlers-Danlos Syndrome Fertility Issues
Dr. Candace Ireton & Kimberly Schmidt, LCSW
EDS and Parenting
Dr. Howard Levy
A Primer on Pain Medications
Dr. Edward G. McFarland
Orthopedic Problems in the EDS Patient
Dr. John Mitakides
Temporomandibular Joint & Cervicocranial Dysfunction in the EDS Patient
Dr. Jonah Murdock
Urologic Manifestations of Tethered Cord Syndrome: clinical and urodynamic findings
Dr. Sabrina M. Neeley
Living with EDS: Developing an Effective Self-Management Strategy to Maximize Your Health and Quality of Life
Dr. Alan G. Pocinki
Sleep Disorders in the Hypermobility Syndromes
Jon Rodis & Kathleen Kane
Applying for Disability
Dr. Peter Rowe
Chronic Fatigue in EDS
Kathleen Zonarich
Building a Successful Exercise Program in the EDS Population
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