How You Can Help Print E-mail
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EDNF's mission is to create resources for those affected by the connective tissue disorder Ehlers-Danlos Syndrome. We do this by:

  • Creating and distributing accurate information
  • Providing a network of support and communication
  • Fostering and funding research

Our online community and Local Group network have already done a terrific job of getting new information out into the community but we can always use more support. Here are three ways in which you can immediately make a difference:

Make a Donation to the Foundation

Financial support is critical to the success of EDNF. Whether it is providing operational support for the national office or funding cutting edge research, your donation, no matter how large or how small makes a huge difference. You can make a donation online or through the national office.

Share your Knowledge and EDS Experience

The EDNF online community has been successful because members have chosen to share what they know about EDS with others. As we exceed 46,000 posts, this unique source of information on EDS will become more valuable and useful. You can join the Foundation online or through the national office

Volunteer Your Time with EDNF

There are many opportunities to help for people who have some spare time to devote to EDS. EDNF Local groups are full of wonderful and talented individuals who would love assistance in getting the message out to the local community. The need for dynamic content, community moderation, information mining and hundreds of other online opportunities, means that even if you are not as mobile as others, you can still make an impact. Find out about EDNF Local Groups and how to get involved.