mission is to create resources for those affected by the connective tissue disorder
Ehlers-Danlos Syndrome. We do this by:
- Creating and distributing accurate
- Providing a network of support
- Fostering and funding research
Our online community and Local Group
network have already done a terrific job of getting new information out into
the community but we can always use more support. Here are three ways in which
you can immediately make a difference:
Make a Donation to the Foundation
Financial support is critical to
the success of EDNF. Whether it is providing operational support for the national
office or funding cutting edge research, your donation, no matter how large
or how small makes a huge difference. You can make a donation
online or through the national office.
Share your Knowledge and EDS Experience
The EDNF online community has been
successful because members have chosen to share what they know about EDS with
others. As we exceed 46,000 posts,
this unique source of information on EDS will become more valuable and useful.
You can join the Foundation online or through
the national office
Volunteer Your Time with EDNF
There are many opportunities to help
for people who have some spare time to devote to EDS. EDNF Local
groups are full of wonderful and talented individuals who would love assistance
in getting the message out to the local community. The need for dynamic content,
community moderation, information mining and hundreds of other online opportunities,
means that even if you are not as mobile as others, you can still make an impact.
Find out about EDNF Local Groups and how
to get involved.