Welcome to Ehlers-Danlos National Foundation (EDNF) Web site, http://www.ednf.org, an online community that connects people with an interest in Connective Tissue Disorders, most particularly the Ehlers-Danlos Syndromes (EDS). www.ednf.org is operated by The Ehlers-Danlos National Foundation (EDNF). By using the EDNF web site (the "Web site") you agree to be bound by these Terms of Service (this "Agreement"). If you wish to become a Member and communicate with other Members and make use of the EDNF service (the "Service"), read these Terms of Service and indicate your acceptance of them by checking the box on the sign up page.
This Agreement sets out the legally binding terms of your use of the Web site and your membership in the Service and may be modified by EDNF at any time and without prior notice, such modifications to be effective upon posting by EDNF on the Web site. This Agreement includes EDNF acceptable use policy for content posted on the web site.
You must be sixteen or over to register as a member of EDNF or use the Web site. Membership in the Service is void where prohibited. By using the Web site, you represent and warrant that you have the right, authority, and capacity to enter into this Agreement and to abide by all of the terms and conditions of this Agreement.
This Agreement will remain in full force and effect while you are a Member. You may terminate your membership at any time, for any reason. Membership fees are non-refundable. Even after membership is terminated, this Agreement will remain in effect.
3.Non Commercial Use by Members.
The Web site is for the personal use of individual Members only and may not be used in connection with any commercial endeavors. Passwords and compiled names, photos, links, and Web site content are not to be transferred or copied from the Web site for use with any other product or service. Illegal and/or unauthorized uses of the Web site, including collecting usernames and/or email addresses of members by electronic or other means for the purpose of sending unsolicited email and unauthorized framing of or linking to the Web site will be investigated, and appropriate legal action will be taken, including without limitation, civil, criminal, and injunctive redress.
4.Proprietary Rights in Content on www.ednf.org.
EDNF owns and retains all proprietary rights in the Web site and the Service. The Web site contains the copyrighted material, including links and compilations of individual data, trademarks, and other proprietary information of EDNF, and its licensors. Except for that information which is in the public domain or for which you have been given written permission, you may not copy, modify, publish, transmit, distribute, perform, display, or sell any such proprietary information.
5.Content Posted on the Site.
You understand and agree that the purpose of these boards is as an online forum providing positive interactions and support for the EDS community.
You understand and agree that EDNF will not tolerate attacks on Ehlers-Danlos National Foundation, its Staff or Volunteers. Members with grievances may contact their Local Group Leader or the National Office. Any such posts will be removed immediately.
You understand and agree that EDNF may review and delete any content, messages, photos or profiles (collectively, "Content") that in the sole judgment of EDNF violate this Agreement or which might be offensive, illegal, or that might violate the rights, harm, or threaten the safety of Members.
Your profile must describe you, an individual person. Examples of inappropriate profiles include, but are not limited to, profiles that purport to represent an animal, place, inanimate object, fictional character, or real individual who is not you.
You are solely responsible for the Content that you publish or display (hereinafter, "post") on the Service, or transmit to other Members.
By posting Content to any area of EDNF, you automatically grant, and you represent and warrant that you have the right to grant, to EDNF an irrevocable, perpetual, non-exclusive, fully paid, worldwide license to use, copy, perform, display, and distribute such information and content and to prepare derivative works of, or incorporate into other works, such information and content, and to grant and authorize sublicenses of the foregoing.
The following is a partial list of the kind of Content that is illegal or prohibited on the Web site. EDNF reserves the right to investigate and take appropriate legal action in its sole discretion against anyone who violates this provision, including without limitation, removing the offending communication from the Service and terminating the membership of such violators. It includes Content that:
- is patently offensive to the online community, such as Content that promotes racism, bigotry , hatred or physical harm of any kind against any group or individual;
- harasses or advocates harassment of another person;
- involves the transmission of "junk mail", "chain letters," or unsolicited mass mailing or "spamming";
- promotes information that you know is false, misleading or promotes illegal activities or conduct that is abusive, threatening, obscene, defamatory or libelous;
- promotes an illegal or unauthorized copy of another person's copyrighted work, such as providing pirated computer programs or links to them, providing information to circumvent manufacture-installed copy-protect devices, or providing pirated music or links to pirated music files;
- contains restricted or password only access pages, or hidden pages or images (those not linked to or from another accessible page);
- displays pornographic or sexually explicit material of any kind;
- provides material that exploits people under the age of 18 in a sexual or violent manner, or solicits personal information from anyone under 18;
- provides instructional information about illegal activities such as making or buying illegal weapons, violating someone's privacy, or providing or creating computer viruses;
- solicits passwords or personal identifying information for commercial or unlawful purposes from other users; and
- engages in commercial activities and/or sales without our prior written consent such as contests, sweepstakes, barter, advertising, and pyramid schemes;
Even though all of this is strictly prohibited, there is a small chance that you might become exposed to such items and you further waive your right to any damages (from any party) related to such exposure.
You may not engage in advertising to, or solicitation of, other Members to buy or sell any products or services through the Service. You may not transmit any chain letters or junk email to other Members. Although EDNF cannot monitor the conduct of its Members off the Web site, it is also a violation of these rules to use any information obtained from the Service in order to harass, abuse, or harm another person, or in order to contact, advertise to, solicit, or sell to any Member without their prior explicit consent.
You may not post, distribute, or reproduce in any way any copyrighted material, trademarks, or other proprietary information without obtaining the prior written consent of the owner of such proprietary rights. Without limiting the foregoing, if you believe that your work has been copied and posted on the Service in a way that constitutes copyright infringement, please provide us with the following information: an electronic or physical signature of the person authorized to act on behalf of the owner of the copyright interest; a description of the copyrighted work that you claim has been infringed; a description of where the material that you claim is infringing is located on the Web site; your address, telephone number, and email address; a written statement by you that you have a good faith belief that the disputed use is not authorized by the copyright owner, its agent, or the law; a statement by you, made under penalty of perjury, that the above information in your notice is accurate and that you are the copyright owner or authorized to act on the copyright owner's behalf. EDNF can be reached as follows: EDNF, 3200 Wilshire Boulevard, South Tower, Suite 1601, Los Angeles, CA 90010.
You are solely responsible for your interactions with other EDNF Members. EDNF reserves the right, but has no obligation, to monitor disputes between you and other Members.
The Ehlers-Danlos National Foundation presents the information contained on this website solely as a guide to provide visitors with direction in their interaction with professional health care providers and in making health care decisions.
The information contained on this web site does not constitute medical advice, nor is it a substitute for medical advice.
Always consult with your doctor before starting any treatment.Currently the EDNF does not provide physician referrals and does not endorse any particular health care professional.
This web site contains several links to other web sites on a variety of topics. These links are provided to aid visitors in their personal research. Information on these pages should NEVER take the place of consulting with a doctor. The Ehlers-Danlos National Foundation is not responsible for the content of any of the aforementioned links. Views expressed therein are those of the authors, and should not be construed to be those of the Ehlers-Danlos National Foundation, or any of its officers or members.
EDNF is not responsible for any incorrect or inaccurate Content posted on the Web site or in connection with the Service, whether caused by users of the Web site, Members or by any of the equipment or programming associated with or utilized in the Service. EDNF is not responsible for the conduct, whether online or offline, of any user of the Web site or Member of the Service. EDNF assumes no responsibility for any error, omission, interruption, deletion, defect, delay in operation or transmission, communications line failure, theft or destruction or unauthorized access to, or alteration of, user or Member communications. EDNF is not responsible for any problems or technical malfunction of any telephone network or lines, computer online systems, servers or providers, computer equipment, software, failure of email or players on account of technical problems or traffic congestion on the Internet or at any web site or combination thereof, including injury or damage to users and/or Members or to any other person's computer related to or resulting from participating or downloading materials in connection with the Web and/or in connection with the Service. Under no circumstances will EDNF be responsible for any loss or damage, including personal injury or death, resulting from anyone's use of the Web site or the Service, any Content posted on the Web site or transmitted to Members, or any interactions between users of the Web site, whether online or offline. The Web site and the Service are provided "AS-IS" and EDNF expressly disclaims any warranty of fitness for a particular purpose or non-infringement. EDNF cannot guarantee and does not promise any specific results from use of the Web site and/or the Service. The service may be temporarily unavailable from time to time for maintenance or other reasons. No advice or information, whether oral or written, obtained by user from EDNF or through or from the service shall create any warranty not expressly stated herein.
9.Limitation on Liability.
Except in jurisdictions where such provisions are restricted, in no event will EDNF be liable to you or any third person for any indirect, consequential, exemplary, incidental, special or punitive damages, including also lost profits arising from your use of the Web site or the Service, even if EDNF has been advised of the possibility of such damages. Notwithstanding anything to the contrary contained herein, EDNF's liability to you for any cause whatsoever, and regardless of the form of the action, will at all times be limited to the amount paid, if any, by you to EDNF for the Service during the term of membership.
If there is any dispute about or involving the Web site and/or the Service, by using the Web site, you agree that the dispute will be governed by the laws of the State of California without regard to its conflict of law provisions. You agree to personal jurisdiction by and venue in the state and federal courts of the State of California, City of Los Angeles.
You agree to indemnify and hold EDNF, its subsidiaries, affiliates, officers, agents, and other partners and employees, harmless from any loss, liability, claim, or demand, including reasonable attorney's fees, made by any third party due to or arising out of your use of the Service in violation of this Agreement and/or arising from a breach of this Agreement and/or any breach of your representations and warranties set forth above. If You are a California resident, You waive California Civil Code Section 1542, which says "A general release does not extend to claims which the creditor does not know or suspect to exist in his favor at the time of executing the release, which, if known by him must have materially affected his settlement with the debtor."
There is no agency, partnership, joint venture, employee-employer or franchisor-franchisee relationship between EDNF and any User of the Service.
This Agreement, accepted by becoming a Member of EDNF, contains the entire agreement between you and EDNF regarding the use of the Web site and/or the Service. The failure of EDNF to exercise or enforce any right or provision of these Terms of Service shall not constitute a waiver of such right or provision. If any provision of this Agreement is held invalid, the remainder of this Agreement shall continue in full force and effect. The section titles in these Terms of Service are for convenience only and have no legal or contractual effect.
us with any questions regarding this agreement.
I HAVE READ THIS AGREEMENT AND AGREE TO ALL OF THE PROVISIONS CONTAINED ABOVE.