General Patient Brochure 

High Resolution Brochure now available for download. This file is print ready.

* Produced for Patients by the National Awareness Committee with input from the Professional Advisory Network

All Types of EDS CD-ROM

* Contains an overview of the different types of EDS
* Presented by Dr. Lavallee for health care professionals
* Includes Emergency Physician's Reference CD-Rom materials

Emergency Physician's Reference CD-ROM

* EDS Vascular (Type IV) Trauma Information
* Presented by physicians for physicians
* 20 page booklet
* Updated December 2003

An Educators Guide: Meeting The Needs of The Ehlers-Danlos Child
A Parent's Guide: Helping your Child Succeed at School

* This 20 page booklet was prepared to help educators and parents better understand and provide for the needs of the Ehlers-Danlos student.

Sports Participation Poster for Coaches and Trainers

* This poster can is designed to place in schools, gyms and sports centers so that those with EDS might be discovered and helped.

Communication Guide

* This guide will help you to obtain media awareness for EDS.

Loose Connections

* Quarterly newsletter of the EDNF

2008 issues available to members only.

2006-7 issues available to members only. Click here for latest issues

Download issues prior to 2006 as pdf files. Click here for archived issues and their summaries