| I have EDS and was just diagnosed with Chiari, is this related to EDS? |
| There are many Chiari patients, who also have EDS. An added caution is needed due to the diagnosis of EDS. Chiari typically is treated in one of two ways: Drug management and/or surgery. With EDS, the surgical protocol must be altered to protect connective tissue and deal with arachnoid scarring or adhesions; also prevent cranial-cervical instability. The surgical techniques are different, too: designed to protect fragile tissues and prevent or minimize bleeding; and post operatively, there's more emphasis on preventing or fixing would dehiscence. Seek out and consult with Chiari-experts before undergoing any treatment or surgery. It's generally not an emergency, unless you have any of the three red flag symptoms: choking, breathing problems or drop attacks. Those indicate more severe brainstem involvement, don't delay in seeking treatment for them. (Grubb 2002 - Rowe er.al 1999) |