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I have EDS and was just diagnosed with Chiari, is this related to EDS? |
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There are many Chiari patients, who also have EDS. An
added caution is needed due to the diagnosis of EDS. Chiari typically
is treated in one of two
ways: Drug management and/or surgery. With EDS, the surgical protocol
must be altered to protect connective tissue and deal with arachnoid
scarring or adhesions; also prevent cranial-cervical instability. The
surgical techniques are different, too: designed to protect fragile
tissues and prevent or minimize bleeding; and post operatively, there's
more emphasis on preventing or fixing would dehiscence. Seek out and
consult with Chiari-experts before undergoing any treatment or surgery.
It's generally not an emergency, unless you have any of the three red
flag symptoms: choking, breathing problems or drop attacks. Those
indicate more severe brainstem involvement, don't delay in seeking
treatment for them. (Grubb 2002 - Rowe er.al 1999)
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