Ehlers-Danlos National Foundation

2010 Conference Schedule

Note: Schedule is subject to change for many reasons. Please doublecheck once you're at the conference. The EDNF Kids & Teens Activities schedule is near the bottom of the page.

Thursday, July 15, 2010

4:00–5:00 pm	Aquatic Exercise
6:00–8:00 pm	Welcome Reception

Friday, July 16, 2010

7:45–8:15 am	Breakfast
8:15–8:45 am	Welcome and announcements
8:45–9:30 am	Dr. Bradley Tinkle	EDS: What's in a name?
9:30–10:30 am	Dr. Clair Francomano	Comprehensive Pain Management
10:30–10:45 am	Break
10:45–11:30 am	Dr. Rodney Grahame	Benign Joint Hypermobility: Is it Really EDS After All?
11:30 am–12:30 pm	Dr. Jay Shah	Myofascial Pain & Dysfunction: From Peripheral to Central Sensitization
12:30–1:30 pm	Lunch
1:30–4:30 pm	Consultations (Drs. Tinkle,Francomano, Grahame, Levy, Pocinki)
1:30–2:15 pm	Dr. James Black	Assessment of Surgical & Interventional Practices in EDS
	Carrie Atzinger	Echocardiographic Findings in EDS
	Linda Neumann-Potash	Living with EDS
	Dr. Glenda Sobey	EDS in the UK—A New National Diagnostic Service
2:15–3:00 pm	Dr. Scott Greenberg	Prolotherapy
	Kathleen Zonarich	Achieving a Successful Outcome with Physical Therapy
	Stacey LeFevre	EDS & Depression: Risk and Resilience (research study)
	Dr. Jay Shah	Chronic Pain & Sensitization: Integrating Pain Mechanisms with Objective Physical Findings and Treatment
3:00–3:15 pm	Break
3:15–4:00 pm	Dr. Joseph Ernest	Pregnancy and EDS
	Dr. Scott Greenberg	Prolotherapy
	Maggie Buckley	Where are all the EDS Doctors?
	Trish Magyari	Mindfulness Based Stress Reduction
4:00–5:00 pm	Sara Strecker	Unique Perspectives in EDS: Patient and Scientist
	Dr. Nazli McDonnell	Updates From NIH Study on Hereditary Connective Tissue Disorders
	Linda Neumann-Potash	VEDS—What to do after the diagnosis?
	Jon Rodis/Kathleen Kane	Applying for Disability
	Trish Magyari	Mindfulness Based Stress Reduction
5:00–6:00 pm	Professional Advisory Network (PAN) meeting
	Kevin Parmer Tiya Marshall	Social Security
	Local Group meeting
	Aquatic Exercise
6:00–8:00 pm	Reception for Physicians
6:00–8:00 pm	EDNF Kids & Teens Pizza Party
8:00 pm	Noah Baerman, playing at "An die Musik"

Saturday, July 17, 2010

7:45–8:15 am	Breakfast
8:15–8:30 am	Announcements
8:30–9:30 am	Dr. Howard Levy	Management of EDS: From Joints to GI and More
9:30–10:15 am	Dr. Fraser Henderson	Neuro-surgical Treatments for EDS
	Dr. Patrick Agnew	Foot & Ankle Issues in Collagen Vascular Disorders
	Melanie Pepin	Present Research Interest at UWash Inherited Connective Tissue Disease Program
10:15–10:30 am	Break
10:30–11:30 am	Dr. James Black	Assessment of Surgical & Interventional Practices in EDS
	Dr. Joseph Ernest	Pregnancy & EDS
	Dr. Alan Pocinki	Autonomic & Sleep Problems Associated with EDS
	Dr. Glenda Sobey	EDS in the UK—A New National Diagnostic Service
11:30 am–1:00 pm	Roundtable (Life Plan) & Lunch
1:00–2:00 pm	Dr. Alan Pocinki	Autonomic & Sleep Problems in EDS
	Kathleen Zonarich	Achieving a Successful Outcome w/ Physical Therapy
	Jon Rodis/Kathleen Kane	Applying for Disability
	Trish Magyari	Mindfulness Based Stress Reduction
2:00–2:45 pm	Dr. Howard Levy	Management of EDS: From Joints to GI, and more
	Maggie Buckley	Living with EDS
	Linda Neumann-Potash	Dealing with Insurance Companies
	Kylie Roach	You're Going to Stick a Needle WHERE? Acupuncture & Chinese Medicine in EDS Treatment
2:45–3:00 pm	Break
3:00–4:00 pm	Dr. Rodney Grahame	Benign Joint Hypermobility: Is it Really EDS After All?
	Jon Rodis/Kathleen Kane	Q&A session—Disability
	Trish Magyari	Mindfulness Based Stress Reduction
4:15–5:15 pm	Q&A for Physicians Only
4:15–5:15 pm	Aquatic Exercise
6:00–9:00 pm	Banquet

EDNF Kids & Teens Activities

Friday

10:30 am –12:30 pm�	Session 1 15 min - All Ages Gathering Separate Age Group Sessions - Name Games: Self-Disclosure Introductions Two Truths, One Lie Pass the Energy Ball/Stuffed Animal Guest Speaker (all ages) 11:45–12:30
1:30–3:00 pm	Session 2 - Separate Age Group Sessions Younger: individualized activities Older: Crossing the Line Defining Disability - Is it the Right Word? Tell Your Story Guest Speaker (all ages) 2:30–3:00
3:15–5:00 pm	Session 3 - All Ages Session Q&A Roundtable 3:15–3:45 Activity Stations: Craft Projects (15–30 min intervals) Zebra Art, Song Lyrics/Powerpoint, Jewelry, Lanyards Service Dogs Ambulance Tour T-shirts Project 4:45–5:00 Kids & Teens T-shirts given out, signed by fellow group members, to be worn Saturday
6:00–8:00 pm	EDNF Kids & Teens Pizza Party Movie: Finding Nemo

Saturday

9:30–11:30 am	Session 4 15 min - All Ages Gathering Separate Age Group Sessions Younger: individualized activities Older: Pain Scale Creation and Pain Management Guest Speaker (all ages) 10:45–11:30
1:00–2:45 pm	Session 5 Scavenger Hunt 1:00–1:45 (paired younger & older) EDS Jeopardy 1:45–2:15 (based on Scavenger Hunt tags/items) Prizes 2:15–2:30
3:00–4:00 pm	Young Adult & Older Teen Roundtable