2011 Program Handouts

2011 Conference Logo

These are now largely complete. There are a small number missing for whom we had no presentation copies; we will be in touch with them in the next weeks, and they may or may not appear here later. Many thanks.

All presentations are for personal use by members only; copyright is retained by the authors and presenters, and copies cannot be distributed or made without express permission of the original copyright holder. By downloading any of the presentations, you automatically agree to these terms. This page was last updated: August 5, 2011.

Presentation handouts are available in PDF. To download a presentation file to your computer, right-click or control-click the bulleted links and choose save from the menu that pops up. To view the PDF documents, simply click the link. NOTE: Web browsers, plug-ins and extensions are updated frequently, and unexpected problems can result. If you have trouble viewing or printing the PDF, download and save the PDF to your own computer or device, then read or print it through Adobe Acrobat, Reader, or your choice of programs.

Dr. Patrick Agnew

Foot and Ankle Issues In Collagen Vascular Disorders

Romina Astifidis

Joint Protection of the Hands

Dr. James H. Black

Update 2011: Progress in Management of Vascular Issues in EDS

Dr. Heidi Collins

Ehlers-Danlos Syndrome/Joint Hypermobility Syndrome: Are We Really Zebras, or Just Horses of Different Colors?

Dr. Joseph Ernest

Ehlers-Danlos Syndrome and Pregnancy 2011

Dr. Clair Francomano

Ehlers-Danlos Syndrome Update 2011: What We Know—And What We Don't Know

Dr. Rodney Grahame

EDS—A Rheumatologist's Perspective Over Four Decades

Dr. Blair P. Grubb

Postural Orthostatic Tachycardia Syndrome

Sarah Gurley-Green

PATIENT Does Not Mean Passive: Taking Control of Your Healthcare Without Illness Controlling Your Life

Dr. Frank N. H. Harrison, Jr.

Gynecological Issues in EDS

Dr. Fraser Henderson

Deformation of the Nervous System in EDS Patients

Dr. Bradley S. Hurst

Ehlers-Danlos Syndrome Fertility Issues

Dr. Candace Ireton & Kimberly Schmidt, LCSW

EDS and Parenting

Dr. Howard Levy

A Primer on Pain Medications

Dr. Edward G. McFarland

Orthopedic Problems in the EDS Patient

Dr. John Mitakides

Temporomandibular Joint & Cervicocranial Dysfunction in the EDS Patient

Dr. Jonah Murdock

Urologic Manifestations of Tethered Cord Syndrome: clinical and urodynamic findings

Dr. Sabrina M. Neeley

Living with EDS: Developing an Effective Self-Management Strategy to Maximize Your Health and Quality of Life

Dr. Alan G. Pocinki

Sleep Disorders in the Hypermobility Syndromes

Jon Rodis & Kathleen Kane

Applying for Disability

Dr. Peter Rowe

Chronic Fatigue in EDS

Kathleen Zonarich

Building a Successful Exercise Program in the EDS Population