2012 Session List

Following is an alphabetical listing of sessions for those speakers who have confirmed their participation in EDNF's 2012 Learning Conference; however, schedules can change, so please check back for updates. We will post changes as they become available. Last updated: July 19, 2012.
Session TitleSpeaker
Aquatic Exercise: Benefits and Principles for the EDS PopulationKathleen Zonarich, PT
Canines for Disabled Kids (CDK) 
Diagnosis and Treatment of TMJ and Head/Neck Pain for the EDS PatientJohn Mitakides, DDS
EDNF: Past, Present, and FutureShane Robinson
EDS Today and TomorrowBrad Tinkle, MD, PhD
Ehlers-Danlos Syndrome and Social Security Disability BenefitsShoshana R. Pehowic, Esq.
Foot and Ankle Issues in Collagen Vascular DisordersPatrick Agnew, DPM
How to Communicate With Your Doctor & Build Your Medical TeamLinda Neumann-Potash, RN, MN, CBN
Hypermobility, Fibromyalgia, and Chronic PainRodney Grahame, CBE, MD, FRCP, FACP
Hypermobility: Getting Healthy, Improving Function & StrengthOpal Riddle, PR, DPT
Dawn Westfal, CPT
It's Not in Your Head—Or Is It?Howard Levy, MD, PhD
Living at Home with EDSMarnie Renda, OTR/L, CAPS, ECHM
Mast Cell DisordersAndrew Smith, MD
Neck/SpineAtiq Durrani, MD
Newly DiagnosedDiscussion Group
Occupational Therapy Management of Hypermobility in EDSMichelle O'Sullivan
Michele Pavlis
Pain Management in Everyday LifeClair Francomano, MD
Pain Management: More than Just a PillAnne Lynch-Jordan, PhD
Physical Therapy in Pediatric EDSPaula Melson
Parents of Children with EDSDiscussion Group
Physical Therapy in Pediatric EDSStephanie Powell
Pilates: What Can It Offer the EDS Patient?Crystal Seamon, PT, DPT, OCS, ATC
Poor Sleep and Ehlers-Danlos SyndromeSusan Cordes, MS, CGC
Pregnancy in EDSRon Jaekle, MD
Research topics—pregnancy survey results Anna Mitchell, MD, PhD
School Integration / Re-entry, Plan for 504, IEPMary Kay Irwin, EdD, (ABD)
Sleep Disorders in Ehlers-Danlos SyndromeAlan Pocinki, MD
Shoulder Instability in Patients with EDS Keith Kenter, MD
Spouses and Significant Others (Caregivers)Discussion Group
Tai Chi for Joint Strength and StabilizationRalph Dehner, COTA/L
Understanding the Relationship Between Self-Efficacy, Locus of Control, and Self-Management Behaviors in Adult Patients with Ehlers-Danlos SyndromeSabrina Neeley, PhD, MPH
Vascular Ehlers-Danlos Syndrome: Placing Recent Studies in ContextMitzi L. Murray, MD, MA
Vascular EDSDiscussion Group
Vascular Problems in EDSJames H. Black III, MD, FACS
VEDS Tendon Utrasound ProjectElizabeth Russell, MD
Women: Understanding, Preventing, and Managing Pelvic Floor DysfunctionKathleen Zonarich, PT
Young Adults/TeensDiscussion Group