THIS IS AN ARCHIVED FILE. IT IS OUT OF DATE AND KEPT FOR HISTORICAL PURPOSES.
The message boards are the "hub" of the online member community. The EDNF currently offers more than 200 different forums. Each forum is part of the following folders:
- General Discussion
- Kids & Teens
- Types of EDS
- Local Groups
- Research
- EDNF Conferences
- Media Tracking Boards
General Discussion The General Discussion boards contain the majority of information that is swapped and shared between EDNF members. The 49 boards within the General Discussion group are split into the following folders: General, Medical, Support, and Recipes.
| Support | |
| EDS 50+ | Grief & Loss |
| Humor | My Spouse Has EDS |
| Parents & Children with EDS | Parents Who Have Children with EDS |
| Parents Who Have EDS | Thinking Of You |
| Coping Techniques | Weight Loss |
Media Tracking Boards When an EDNF member hands out an EDNF educational program or product to a health care professional, they are encouraged to make a note of that HCP's details in the Media tracking message board. Broken down by state, these message boards show where we are getting our educational programs across. It also gives a good indication of the institutions who have been made aware of EDS.
| Alabama | Alaska |
| Arizona | Arkansas |
| California | Connecticut |
| Colorado | District of Columbia |
| Delaware | Georgia |
| Florida | Idaho |
| Hawaii | Indiana |
| Illinois | Iowa |
| Kansas | Kentucky |
| Louisiana | Maine |
| Maryland | Massachusetts |
| Michigan | Minnesota |
| Mississippi | Missouri |
| Montana | Nebraska |
| Nevada | New Hampshire |
| New Jersey | New Mexico |
| New York | North Carolina |
| North Dakota | Ohio |
| Oklahoma | Oregon |
| Pennsylvania | Rhode Island |
| South Carolina | South Dakota |
| Tennessee | Texas |
| Utah | Vermont |
| Virginia | Washington |
| West Virginia | Wisconsin |
| Wyoming | |
| | |
| International | Canada |
Kids & Teens We feel that it is essential for children to have their own area on the EDNF message board system. We are actively expanding and developing this area as more and more children get involved.
| Kids Only | Teens Only |
| Children who Have Parents With EDS | Seeking A Pen Pal |
| For Family Members Who Don't Have EDS | |
Types
of EDS Message Boards broken down by Type. Due to the different
challenges faced by those with the 
Vascular Type, there is a whole set
of boards dedicated to Vascular type issues.
| EDS Types | |
| Arthrochalasia Type (VII A & B) | Classical Type (I & II) |
| Dermatosparaxis Type (VII C) | Hypermobility Type (III) |
| Kyphoscoliosis Type (VI) | Unknown Type |
| Vascular Type Discussion | |
| Questions & Answers | Ongoing Questions |
| Arterial Issues | Cardiac Issues |
| Coping Techniques | Dental Issues |
| Diagnosis & Testing | Exercise |
| Gastrointestinal Issues | Have You Ever Had |
| Newly Diagnosed | Nutrition Issues |
| OB / GYN Issues | Parents Whose Children Have VEDS |
| Parents With VEDS | Testing For VEDS |
| Thinking Of You | Young Adults With VEDS |
Local Groups List of boards, by Group, where members can keep in touch with local activities and communicate with other EDNF Local Groups.
| Local Group Information | |
| Information | Group Meetings-Things That Work |
| Starting a New Group | Awareness |
| Education | Fundraising |
Michigan: Ann Arbor
Nebraska: Eastern NE
| Groups | |
| Alabama: Alabama |
Arizona: Phoenix Metro |
| Australia | |
| California: On-Line Information | California: San Fernando Valley |
| California: San Diego | Colorado: Denver |
| Florida: Emerald Coast |
Colorado: Northern Front Range Connecticutt: Western CT |
| Help: No Group in my area | Georgia: Atlanta |
| Indiana/Michigan: Michiana | Florida: Central Florida Crackers |
| | |
| Maryland: Baltimore |
Maryland: DC Metro Massachusetts: Eastern MA |
|
Missouri: St. Louis |
|
| New Jersey: North Central NJ | New Mexico: NM Connects |
| New York: New York City | |
| New York: Thousand Islands | New York: Western NY |
| North Carolina: Piedmont Triad | |
| Ohio: Central Ohio | Rhode Island: Southern New England |
| Pennsylvania: Pittsburgh |
South Carolina: South Carolina Branch Texas: Dallas/Fort Worth Texas: Greater Austin |
|
Texas: Greater Houston Texas: San Antonio |
Virginia: Northern Virginia Virginia: Richmond & Central VA |
|
| Wisconsin: Milwaukee |
| Discussion Board | Published Research |
| Research Sites | |
| EDNF Conference 2006 | |
| Conference Idea Filter | Information |
| 2006 Conference Roommates | |