Contact Information for EDNF
If you are looking for information about Ehlers-Danlos syndrome for yourself or a family member, the fastest way is to join the EDNF Inspire Online Community.  At this time, the National Office does not provide physician referrals; we do have a list of doctors who have treated EDS patients and chosen to be listed in our Physicians Directory.

EDNF National Office

1760 Old Meadow Road
Suite 500
McLean, Virginia 22102

(703) 506-2892
(703) 506-3266 fax

Website: http://www.ednf.org

E-mail: This e-mail address is being protected from spam bots, you need JavaScript enabled to view it

Board of Directors

Professional Advisory Network

EDNF does not offer diagnosis or recommend either treatment options or physicians, but the EDNF HelpLine volunteers may be able answer some of your general questions. See also the Physicians Directory.