EDNF 2005 Research Grant Awards

A recent survey among EDNF members has once again revealed the importance for our membership of more research on this complex and difficult syndrome. EDNF continues its policy of funding new studies about EDS and we are very proud to announce the results of the 2005 grant application process.

In partnership with the National Organization of Rare Disorders (NORD), EDNF has again provided the funds for two new seed grants in 2005. Seven proposals were submitted for EDS studies, and of those, five were asked to submit complete proposals. Of the final four submitted; two were selected by the NORD Medical Advisory Committee for an award of our funds. The successful researchers and their projects are as follows:

Anton Persikov
Robert Wood Johnson Medical School
"Establishing Molecular Basis of Ehlers-Danlos Syndrome by Bio-informatics and Biophysics approaches."

Margret Cassal
University of Pennsylvania School of Veterinary Medicine
"A Canine Model of Autosomal Dominance of Ehlers-Danlos Syndrome"

To view update on the canine model research, click here. 

We will publish updates of these studies in future issues of Loose Connections. EDNF is very grateful to those who have supported this crucial effort. These initiatives were made possible by the generous support of EDNF members and their families. You can help us to continue these activities by making an online donation to EDNF