Local Group Representatives Mandatory Session #1: Q&A Period

EDNF Representative 

Meet the Patients

A Panel of EDS Patients

Whether you’re a doctor, PT, OT, nurse, or patient, you’ll really benefit from this opportunity to see patients afflicted with different types of EDS. Although we stress that patients shouldn’t perform circus acts, we’ll make an exception this time. Best of all, you can ask panel members any questions you’ve been chomping at the bit to ask.

Friday, July 21, 2:00–2:45pm

Ask the Doctors

A Panel of Physicians

This session continues to be the most popular session at every conference. After all, when can you ask doctors any question you want and not receive a bill? Be sure to get here early before all seats are taken. And be sure to prioritize your questions. Note: There will be a different panel of physicians each day. And, all you doctors who have come, can even ask the physician panel some tough questions.

Friday, July 21, 3:00–4:00pm and Saturday, July 22, 11:15am–12:00noon

Physicians Round Table (sorry, docs only)

This prestigious session has been added this year.�  Physicians from all disciplines are encouraged to attend. And in a relaxed atmosphere, you can share experiences, develop networking contacts, and ask those in-depth questions which the normal patient wouldn’t understand. And since dinner is on your own tonight, you might want to continue the session over dinner. Light snacks are provided.

� Friday, July 21, 4:30–5:30pm and Saturday, July 22, 4:15-5:15pm

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medical sessions

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The following are a sampling of the medical sessions offered. An * identifies PT and Nursing CEUs.

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� � � � � � � � � �  Findings from EDS and Other Heritable Disorders of Connective-Tissue Study*

Nazli McDonnell, MD, NIA researcher studying EDS, Marfans Syndrome, Chiari and Sticklers

Astute, talented, and personable, Dr. McDonnell has devoted much of her time to studying EDS and other inherited connective-tissue disorders. In fact many EDSers have already participated in her cutting-edge study. Now learn about her findings first-hand. Or, perhaps, you too can be a part of medical history.

Friday, July 21, 9:00–10:30am

� � � � �  Make Sure Your Feet Are in Good Standing*

TBA

Friday, July 21, 10:45–11:30am

� � � � �  Pain Management Workshop

Maggie Buckley

Healthcare professionals often diagnose patients because of the type of pain they describe. Learn how to describe your pain in a way doctors, nurses, and PTs will understand and be able to treat your symptoms.

Friday, July 21, 11:30am–12:15pm and Saturday, July 22, 1:00–2:00

� � � � �  Nursing Pitfalls in the ER*

Denise McGinley, RN

Life and death situations often happen in the ER. This is especially true for EDS patients. Learn some special life-saving tips from a nurse who has spent a large part of her life in a high-traffic ER.

Friday, July 21, 11:30am–12:15pm

� � � � �  Pediatric Seating Systems*

Adouro

Unfortunately, EDS can maim and immobilize the smallest of children. Learn about new pediatric seating systems and how they can help your child or patient enjoy life to the fullest. All children can attend this session with their parents.

EDS Friday, July 21, 11:30am–12:15pm

� � � � �  Bowel Perforations and the EDS Patient*

Steve Swartz, MD

One of the universal complications of EDS is some type of bowel perforation (including hernias and aneurysms). Dr. Swartz has treated several EDS patients and explains what to watch for and how you can get the help you need.�  Are you at risk? And what can you do about it?

Friday, July 21, 1:15–2:00pm

� � � � �  Ankle Treatments for Hypermobile Patients*

Alberto Friedmann, MS, Olympic gold medalist and coach for the US Martial Arts Team

This rivoting session demonstrates the use of new movement techniques, as well as new ways for PTs/OTs to look at the EDS patient. In addition, you’ll pickup great tips on how patients can explain their unique needs. After all, he suffers from Hypermobile EDS himself.

Friday, July 21, 1:15–2:00pm

� � � � �  Miscellaneous Orthopedic Complications*

TBA

Friday, July 21, 2:00–3:00pm

�  � � � � Aqua Therapy*

TBA

Friday, July 21, 3:15–4:15pm

� � � � �  Ways of Diagnosing EDS*

Marcia Willing, MD, Researcher at Iowa State

Tired of hearing, “You are strange; I wish I knew what you have”? Or, “You have a very rare disease, and I think you need another doctor.” Or “You can’t have EDS if your mother or father didn’t have it.” Or, “You can’t have it if you can’t touch the ground flat handedly.” Hear how one experienced doctor has routinely examined and diagnosed many patients. There are experts out there and you can meet one.

Saturday, July 22, 8:00–9:00am

� � � � � Cardiovascular Surgery and the EDS Patient*

Joseph Coselli, MD, FACC:

This session is a must for the Classical and Vascular types of EDS. And, as we learn more about the other types of EDS, we discover that many of those patients eventually suffer from bleeding issues. However, EDS doesn’t always have to be a death sentence.� Instead, find out ways to improve your chances of a successful surgery and how you can start preparing today!

Saturday, July 22, 9:00–10:45am

� � � � �  Self-Defense for Those With Disabilities

Alberto Friedmann, MS, Olympic gold medalist and coach for the US Martial Arts Team

Just because you’re disabled, you don’t have to be vulnerable. Learn self-confidence and techniques to protect yourself from an expert who done just that. And, yes, he also has EDS so there’s no excuse.�  Reclaim your life! Teenagers welcome.

Saturday, July 22, 9:15–10:45am

� � � � �  Shoulder Stabilization*

Steven Alden Stratton,� Ph.D., P.T., A.T.C

Whether you’re a Pt, OT, doctor, nurse, or patient, you’ll receive a wealth of information on stabilizing hypermobile joints, one of the most prevalent issues in EDS patients.

Saturday, July 22, 11:00am–12:00noon

� � � � �  High-Risk Pregnancy*

TBA

Although the decision to have a child is a personal one, you’ll learn what to expect from a high-risk pregnancy and how to prepare if you choose to have a child. Teenagers are encouraged to attend this session.

Saturday, July 22, 1:00–2:00pm

� � � � �  Transverse Abdominal Stabilization*

Steven Alden Stratton,� Ph.D., P.T., A.T.C

Whether you’re a Pt, OT, doctor, nurse, or patient, you’ll receive a wealth of information on this ingenious technique, perfected from his 30 years of experience.

Saturday, July 22, 1:00–2:00pm

enrichment and family sessions

� � � � �  Caregiver Tips

� Gary Hegler

�  Many EDS patients forget that when you’re diagnosed with EDS, your partner has also been

� diagnosed with this disorder. In fact, sometimes the caregiver gets the worst deal. Learn

�  some ways to make your relationship work and ways to alleviate stress on both parties.

�  Friday, July 21, 9:00–10:30pm

� � � � �  Social Security Disability Process

Social Security Administrator

Frustrated about the disability process? This session will give you a step-by-step process on how to fill out the required forms and explains what the government needs to determine if you are eligible for disability payments. Disability lawyers are also on site to answer your questions and concerns.

Friday, July 21, 9:00–10:30am

� � � � �  Kid’s Corner

TBA

� This session helps kids understand EDS and how it affects him or others in the family. It’s� � � �  also a time for kids to talk frankly on how EDS has affected their life.

� � � � �  Improving Your Quality of Life

Josh Rosenheck

� Many EDS patients have never had the opportunity to just talk to another patient, no less a VEDS patient who has learned to improve the quality of his life and now wants to help you do the same. Bring your questions, concerns, and issues to this session.

Friday, July 21, 2:00–3:00pm and Friday, July 21, 5:15–6:00pm

� � � � �  Sit and Fit

Pi-Lien Feng, Certified Body Recall Instructor

� Many EDS Patients can’t exercise strenuously, however, they still need to keep good muscle tone and to improve lung capacity. And you can do that by sitting in a chair––even in front of the TV. And with a ball, scarve, and bean bag, you love exercise time.

Friday, July 21, 3:15–4:15pm

� � � � �  Diet and Nutrition

� � � � � � � � � � � � Pi-Lien Feng, BA, Home Economics, Taiwan

� Diet and Nutrition play a major part in keeping a patient healthy. Learn how you can cook balanced meals as suggested by the USDA guidelines. And they won’t be boring meals. In fact, Ms. Feng’s exciting recipes can be found in her book, Eating and Living Healthy, to be published in December 2006.

Friday, July 21, 4:15–5:00pm

� � � � �  Chiropractor Tips and Holistic Medicine

� Michael Prioux, DO

Since there aren’t too many new treatments out there for the EDS patient, many have turned to complementary treatments, including those performed by chiropractors and holistic medicine practitioners. And although these methods aren’t a substitute for more orthodox medical treatments , they can greatly enhance your quality of life. Just ask me.

Friday, July 21, 4:15–5:00pm and Friday, July 21, 5:15–6:00pm

interactive sessions

enrichment and family sessions

� � � � �  Caregiver Tips

� Gary Hegler

�  Many EDS patients forget that when you’re diagnosed with EDS, your partner has also been

� diagnosed with this disorder. In fact, sometimes the caregiver gets the worst deal. Learn

�  some ways to make your relationship work and ways to alleviate stress on both parties.

�  Friday, July 21, 9:00–10:30pm

� � � � �  Social Security Disability Process

Social Security Administrator

Frustrated about the disability process? This session will give you a step-by-step process on how to fill out the required forms and explains what the government needs to determine if you are eligible for disability payments. Disability lawyers are also on site to answer your questions and concerns.

Friday, July 21, 9:00–10:30am

� � � � �  Kid’s Corner

TBA

� This session helps kids understand EDS and how it affects him or others in the family. It’s� � � �  also a time for kids to talk frankly on how EDS has affected their life.

� � � � �  Improving Your Quality of Life

Josh Rosenheck

� Many EDS patients have never had the opportunity to just talk to another patient, no less a VEDS patient who has learned to improve the quality of his life and now wants to help you do the same. Bring your questions, concerns, and issues to this session.

Friday, July 21, 2:00–3:00pm and Friday, July 21, 5:15–6:00pm

� � � � �  Sit and Fit

Pi-Lien Feng, Certified Body Recall Instructor

� Many EDS Patients can’t exercise strenuously, however, they still need to keep good muscle tone and to improve lung capacity. And you can do that by sitting in a chair––even in front of the TV. And with a ball, scarve, and bean bag, you love exercise time.

Friday, July 21, 3:15–4:15pm

� � � � �  Diet and Nutrition

� � � � � � � � � � � � Pi-Lien Feng, BA, Home Economics, Taiwan

� Diet and Nutrition play a major part in keeping a patient healthy. Learn how you can cook balanced meals as suggested by the USDA guidelines. And they won’t be boring meals. In fact, Ms. Feng’s exciting recipes can be found in her book, Eating and Living Healthy, to be published in December 2006.

Friday, July 21, 4:15–5:00pm

� � � � �  Chiropractor Tips and Holistic Medicine

� Michael Prioux, DO

Since there aren’t too many new treatments out there for the EDS patient, many have turned to complementary treatments, including those performed by chiropractors and holistic medicine practitioners. And although these methods aren’t a substitute for more orthodox medical treatments , they can greatly enhance your quality of life. Just ask me.

Friday, July 21, 4:15–5:00pm and Friday, July 21, 5:15–6:00pm

interactive sessions

enrichment and family sessions

� � � � �  Caregiver Tips

� Gary Hegler

�  Many EDS patients forget that when you’re diagnosed with EDS, your partner has also been

� diagnosed with this disorder. In fact, sometimes the caregiver gets the worst deal. Learn

�  some ways to make your relationship work and ways to alleviate stress on both parties.

�  Friday, July 21, 9:00–10:30pm

� � � � �  Social Security Disability Process

Social Security Administrator

Frustrated about the disability process? This session will give you a step-by-step process on how to fill out the required forms and explains what the government needs to determine if you are eligible for disability payments. Disability lawyers are also on site to answer your questions and concerns.

Friday, July 21, 9:00–10:30am

� � � � �  Kid’s Corner

TBA

� This session helps kids understand EDS and how it affects him or others in the family. It’s� � � �  also a time for kids to talk frankly on how EDS has affected their life.

� � � � �  Improving Your Quality of Life

Josh Rosenheck

� Many EDS patients have never had the opportunity to just talk to another patient, no less a VEDS patient who has learned to improve the quality of his life and now wants to help you do the same. Bring your questions, concerns, and issues to this session.

Friday, July 21, 2:00–3:00pm and Friday, July 21, 5:15–6:00pm

� � � � �  Sit and Fit

Pi-Lien Feng, Certified Body Recall Instructor

� Many EDS Patients can’t exercise strenuously, however, they still need to keep good muscle tone and to improve lung capacity. And you can do that by sitting in a chair––even in front of the TV. And with a ball, scarve, and bean bag, you love exercise time.

Friday, July 21, 3:15–4:15pm

� � � � �  Diet and Nutrition

� � � � � � � � � � � � Pi-Lien Feng, BA, Home Economics, Taiwan

� Diet and Nutrition play a major part in keeping a patient healthy. Learn how you can cook balanced meals as suggested by the USDA guidelines. And they won’t be boring meals. In fact, Ms. Feng’s exciting recipes can be found in her book, Eating and Living Healthy, to be published in December 2006.

Friday, July 21, 4:15–5:00pm

� � � � �  Chiropractor Tips and Holistic Medicine

� Michael Prioux, DO

Since there aren’t too many new treatments out there for the EDS patient, many have turned to complementary treatments, including those performed by chiropractors and holistic medicine practitioners. And although these methods aren’t a substitute for more orthodox medical treatments , they can greatly enhance your quality of life. Just ask me.

Friday, July 21, 4:15–5:00pm and Friday, July 21, 5:15–6:00pm

interactive sessions

enrichment and family sessions

� � � � �  Caregiver Tips

� Gary Hegler

�  Many EDS patients forget that when you’re diagnosed with EDS, your partner has also been

� diagnosed with this disorder. In fact, sometimes the caregiver gets the worst deal. Learn

�  some ways to make your relationship work and ways to alleviate stress on both parties.

�  Friday, July 21, 9:00–10:30pm

� � � � �  Social Security Disability Process

Social Security Administrator

Frustrated about the disability process? This session will give you a step-by-step process on how to fill out the required forms and explains what the government needs to determine if you are eligible for disability payments. Disability lawyers are also on site to answer your questions and concerns.

Friday, July 21, 9:00–10:30am

� � � � �  Kid’s Corner

TBA

� This session helps kids understand EDS and how it affects him or others in the family. It’s� � � �  also a time for kids to talk frankly on how EDS has affected their life.

� � � � �  Improving Your Quality of Life

Josh Rosenheck

� Many EDS patients have never had the opportunity to just talk to another patient, no less a VEDS patient who has learned to improve the quality of his life and now wants to help you do the same. Bring your questions, concerns, and issues to this session.

Friday, July 21, 2:00–3:00pm and Friday, July 21, 5:15–6:00pm

� � � � �  Sit and Fit

Pi-Lien Feng, Certified Body Recall Instructor

� Many EDS Patients can’t exercise strenuously, however, they still need to keep good muscle tone and to improve lung capacity. And you can do that by sitting in a chair––even in front of the TV. And with a ball, scarve, and bean bag, you love exercise time.

Friday, July 21, 3:15–4:15pm

� � � � �  Diet and Nutrition

� � � � � � � � � � � � Pi-Lien Feng, BA, Home Economics, Taiwan

� Diet and Nutrition play a major part in keeping a patient healthy. Learn how you can cook balanced meals as suggested by the USDA guidelines. And they won’t be boring meals. In fact, Ms. Feng’s exciting recipes can be found in her book, Eating and Living Healthy, to be published in December 2006.

Friday, July 21, 4:15–5:00pm

� � � � �  Chiropractor Tips and Holistic Medicine

� Michael Prioux, DO

Since there aren’t too many new treatments out there for the EDS patient, many have turned to complementary treatments, including those performed by chiropractors and holistic medicine practitioners. And although these methods aren’t a substitute for more orthodox medical treatments , they can greatly enhance your quality of life. Just ask me.

Friday, July 21, 4:15–5:00pm and Friday, July 21, 5:15–6:00pm

interactive sessions

enrichment and family sessions

� � � � �  Caregiver Tips

� Gary Hegler

�  Many EDS patients forget that when you’re diagnosed with EDS, your partner has also been

� diagnosed with this disorder. In fact, sometimes the caregiver gets the worst deal. Learn

�  some ways to make your relationship work and ways to alleviate stress on both parties.

�  Friday, July 21, 9:00–10:30pm

� � � � �  Social Security Disability Process

Social Security Administrator

Frustrated about the disability process? This session will give you a step-by-step process on how to fill out the required forms and explains what the government needs to determine if you are eligible for disability payments. Disability lawyers are also on site to answer your questions and concerns.

Friday, July 21, 9:00–10:30am

� � � � �  Kid’s Corner

TBA

� This session helps kids understand EDS and how it affects him or others in the family. It’s� � � �  also a time for kids to talk frankly on how EDS has affected their life.

� � � � �  Improving Your Quality of Life

Josh Rosenheck

� Many EDS patients have never had the opportunity to just talk to another patient, no less a VEDS patient who has learned to improve the quality of his life and now wants to help you do the same. Bring your questions, concerns, and issues to this session.

Friday, July 21, 2:00–3:00pm and Friday, July 21, 5:15–6:00pm

� � � � �  Sit and Fit

Pi-Lien Feng, Certified Body Recall Instructor

� Many EDS Patients can’t exercise strenuously, however, they still need to keep good muscle tone and to improve lung capacity. And you can do that by sitting in a chair––even in front of the TV. And with a ball, scarve, and bean bag, you love exercise time.

Friday, July 21, 3:15–4:15pm

� � � � �  Diet and Nutrition

� � � � � � � � � � � � Pi-Lien Feng, BA, Home Economics, Taiwan

� Diet and Nutrition play a major part in keeping a patient healthy. Learn how you can cook balanced meals as suggested by the USDA guidelines. And they won’t be boring meals. In fact, Ms. Feng’s exciting recipes can be found in her book, Eating and Living Healthy, to be published in December 2006.

Friday, July 21, 4:15–5:00pm

� � � � �  Chiropractor Tips and Holistic Medicine

� Michael Prioux, DO

Since there aren’t too many new treatments out there for the EDS patient, many have turned to complementary treatments, including those performed by chiropractors and holistic medicine practitioners. And although these methods aren’t a substitute for more orthodox medical treatments , they can greatly enhance your quality of life. Just ask me.

Friday, July 21, 4:15–5:00pm and Friday, July 21, 5:15–6:00pm

interactive sessions

enrichment and family sessions

� � � � �  Caregiver Tips

� Gary Hegler

�  Many EDS patients forget that when you’re diagnosed with EDS, your partner has also been

� diagnosed with this disorder. In fact, sometimes the caregiver gets the worst deal. Learn

�  some ways to make your relationship work and ways to alleviate stress on both parties.

�  Friday, July 21, 9:00–10:30pm

� � � � �  Social Security Disability Process

Social Security Administrator

Frustrated about the disability process? This session will give you a step-by-step process on how to fill out the required forms and explains what the government needs to determine if you are eligible for disability payments. Disability lawyers are also on site to answer your questions and concerns.

Friday, July 21, 9:00–10:30am

� � � � �  Kid’s Corner

TBA

� This session helps kids understand EDS and how it affects him or others in the family. It’s� � � �  also a time for kids to talk frankly on how EDS has affected their life.

� � � � �  Improving Your Quality of Life

Josh Rosenheck

� Many EDS patients have never had the opportunity to just talk to another patient, no less a VEDS patient who has learned to improve the quality of his life and now wants to help you do the same. Bring your questions, concerns, and issues to this session.

Friday, July 21, 2:00–3:00pm and Friday, July 21, 5:15–6:00pm

� � � � �  Sit and Fit

Pi-Lien Feng, Certified Body Recall Instructor

� Many EDS Patients can’t exercise strenuously, however, they still need to keep good muscle tone and to improve lung capacity. And you can do that by sitting in a chair––even in front of the TV. And with a ball, scarve, and bean bag, you love exercise time.

Friday, July 21, 3:15–4:15pm

� � � � �  Diet and Nutrition

� � � � � � � � � � � � Pi-Lien Feng, BA, Home Economics, Taiwan

� Diet and Nutrition play a major part in keeping a patient healthy. Learn how you can cook balanced meals as suggested by the USDA guidelines. And they won’t be boring meals. In fact, Ms. Feng’s exciting recipes can be found in her book, Eating and Living Healthy, to be published in December 2006.

Friday, July 21, 4:15–5:00pm

� � � � �  Chiropractor Tips and Holistic Medicine

� Michael Prioux, DO

Since there aren’t too many new treatments out there for the EDS patient, many have turned to complementary treatments, including those performed by chiropractors and holistic medicine practitioners. And although these methods aren’t a substitute for more orthodox medical treatments , they can greatly enhance your quality of life. Just ask me.

Friday, July 21, 4:15–5:00pm and Friday, July 21, 5:15–6:00pm

interactive sessions

enrichment and family sessions

� � � � �  Caregiver Tips

� Gary Hegler

�  Many EDS patients forget that when you’re diagnosed with EDS, your partner has also been

� diagnosed with this disorder. In fact, sometimes the caregiver gets the worst deal. Learn

�  some ways to make your relationship work and ways to alleviate stress on both parties.

�  Friday, July 21, 9:00–10:30pm

� � � � �  Social Security Disability Process

Social Security Administrator

Frustrated about the disability process? This session will give you a step-by-step process on how to fill out the required forms and explains what the government needs to determine if you are eligible for disability payments. Disability lawyers are also on site to answer your questions and concerns.

Friday, July 21, 9:00–10:30am

� � � � �  Kid’s Corner

TBA

� This session helps kids understand EDS and how it affects him or others in the family. It’s� � � �  also a time for kids to talk frankly on how EDS has affected their life.

� � � � �  Improving Your Quality of Life

Josh Rosenheck

� Many EDS patients have never had the opportunity to just talk to another patient, no less a VEDS patient who has learned to improve the quality of his life and now wants to help you do the same. Bring your questions, concerns, and issues to this session.

Friday, July 21, 2:00–3:00pm and Friday, July 21, 5:15–6:00pm

� � � � �  Sit and Fit

Pi-Lien Feng, Certified Body Recall Instructor

� Many EDS Patients can’t exercise strenuously, however, they still need to keep good muscle tone and to improve lung capacity. And you can do that by sitting in a chair––even in front of the TV. And with a ball, scarve, and bean bag, you love exercise time.

Friday, July 21, 3:15–4:15pm

� � � � �  Diet and Nutrition

� � � � � � � � � � � � Pi-Lien Feng, BA, Home Economics, Taiwan

� Diet and Nutrition play a major part in keeping a patient healthy. Learn how you can cook balanced meals as suggested by the USDA guidelines. And they won’t be boring meals. In fact, Ms. Feng’s exciting recipes can be found in her book, Eating and Living Healthy, to be published in December 2006.

Friday, July 21, 4:15–5:00pm

� � � � �  Chiropractor Tips and Holistic Medicine

� Michael Prioux, DO

Since there aren’t too many new treatments out there for the EDS patient, many have turned to complementary treatments, including those performed by chiropractors and holistic medicine practitioners. And although these methods aren’t a substitute for more orthodox medical treatments , they can greatly enhance your quality of life. Just ask me.

Friday, July 21, 4:15–5:00pm and Friday, July 21, 5:15–6:00pm

interactive sessions

� � � � �  Meet the Patients

A Panel of EDS Patients

Whether you’re a doctor, Pt, OT, nurse, or patient, you’ll really benefit from this opportunity to see patients afflicted with different types of EDS. Although we stress that patients shouldn’t perform circus acts, we’ll make an exception this time. Best of all, you can ask panel members any questions you’ve been chomping at the bit to ask.

Friday, July 21, 2:00–3:00pm

� � � � �  Ask the Doctors

A Panel of Physicians

This session continues to be the most popular session at every conference. After all, when can you ask doctors any question you want and not receive a bill? Be sure to get here early before all seats are taken. And be sure to prioritize your questions. Note: There will be a different panel of physicians each day. And, all you doctors who have come, can even ask the physician panel some tough questions.

Friday, July 21, 3:15–4:30pm and Saturday, July 22, 11:00am–12:00noon

� � � � �  Physicians Round Table (sorry, docs only)

This prestigious session has been added this year.�  Physicians from all disciplines are encouraged to attend. And in a relaxed atmosphere, you can share experiences, develop networking contacts, and ask those in-depth questions which the normal patient wouldn’t understand. And since dinner is on your own tonight, you might want to continue the session over dinner. Light snacks are provided.

� Friday, July 21, 4:45–6:00pm

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medical sessions

� 

The following are a sampling of the medical sessions offered. An * identifies PT and Nursing CEUs.

� 

� � � � � � � � � �  Findings from EDS and Other Heritable Disorders of Connective-Tissue Study*

Nazli McDonnell, MD, NIA researcher studying EDS, Marfans Syndrome, Chiari and Sticklers

Astute, talented, and personable, Dr. McDonnell has devoted much of her time to studying EDS and other inherited connective-tissue disorders. In fact many EDSers have already participated in her cutting-edge study. Now learn about her findings first-hand. Or, perhaps, you too can be a part of medical history.

Friday, July 21, 9:00–10:30am

� � � � �  Make Sure Your Feet Are in Good Standing*

TBA

Friday, July 21, 10:45–11:30am

� � � � �  Pain Management Workshop

Maggie Buckley

Healthcare professionals often diagnose patients because of the type of pain they describe. Learn how to describe your pain in a way doctors, nurses, and PTs will understand and be able to treat your symptoms.

Friday, July 21, 11:30am–12:15pm and Saturday, July 22, 1:00–2:00

� � � � �  Nursing Pitfalls in the ER*

Denise McGinley, RN

Life and death situations often happen in the ER. This is especially true for EDS patients. Learn some special life-saving tips from a nurse who has spent a large part of her life in a high-traffic ER.

Friday, July 21, 11:30am–12:15pm

� � � � �  Pediatric Seating Systems*

Adouro

Unfortunately, EDS can maim and immobilize the smallest of children. Learn about new pediatric seating systems and how they can help your child or patient enjoy life to the fullest. All children can attend this session with their parents.

EDS Friday, July 21, 11:30am–12:15pm

� � � � �  Bowel Perforations and the EDS Patient*

Steve Swartz, MD

One of the universal complications of EDS is some type of bowel perforation (including hernias and aneurysms). Dr. Swartz has treated several EDS patients and explains what to watch for and how you can get the help you need.�  Are you at risk? And what can you do about it?

Friday, July 21, 1:15–2:00pm

� � � � �  Ankle Treatments for Hypermobile Patients*

Alberto Friedmann, MS, Olympic gold medalist and coach for the US Martial Arts Team

This rivoting session demonstrates the use of new movement techniques, as well as new ways for PTs/OTs to look at the EDS patient. In addition, you’ll pickup great tips on how patients can explain their unique needs. After all, he suffers from Hypermobile EDS himself.

Friday, July 21, 1:15–2:00pm

� � � � �  Miscellaneous Orthopedic Complications*

TBA

Friday, July 21, 2:00–3:00pm

�  � � � � Aqua Therapy*

TBA

Friday, July 21, 3:15–4:15pm

� � � � �  Ways of Diagnosing EDS*

Marcia Willing, MD, Researcher at Iowa State

Tired of hearing, “You are strange; I wish I knew what you have”? Or, “You have a very rare disease, and I think you need another doctor.” Or “You can’t have EDS if your mother or father didn’t have it.” Or, “You can’t have it if you can’t touch the ground flat handedly.” Hear how one experienced doctor has routinely examined and diagnosed many patients. There are experts out there and you can meet one.

Saturday, July 22, 8:00–9:00am

� � � � � Cardiovascular Surgery and the EDS Patient*

Joseph Coselli, MD, FACC:

This session is a must for the Classical and Vascular types of EDS. And, as we learn more about the other types of EDS, we discover that many of those patients eventually suffer from bleeding issues. However, EDS doesn’t always have to be a death sentence.� Instead, find out ways to improve your chances of a successful surgery and how you can start preparing today!

Saturday, July 22, 9:00–10:45am

� � � � �  Self-Defense for Those With Disabilities

Alberto Friedmann, MS, Olympic gold medalist and coach for the US Martial Arts Team

Just because you’re disabled, you don’t have to be vulnerable. Learn self-confidence and techniques to protect yourself from an expert who done just that. And, yes, he also has EDS so there’s no excuse.�  Reclaim your life! Teenagers welcome.

Saturday, July 22, 9:15–10:45am

� � � � �  Shoulder Stabilization*

Steven Alden Stratton,� Ph.D., P.T., A.T.C

Whether you’re a Pt, OT, doctor, nurse, or patient, you’ll receive a wealth of information on stabilizing hypermobile joints, one of the most prevalent issues in EDS patients.

Saturday, July 22, 11:00am–12:00noon

� � � � �  High-Risk Pregnancy*

TBA

Although the decision to have a child is a personal one, you’ll learn what to expect from a high-risk pregnancy and how to prepare if you choose to have a child. Teenagers are encouraged to attend this session.

Saturday, July 22, 1:00–2:00pm

� � � � �  Transverse Abdominal Stabilization*

Steven Alden Stratton,� Ph.D., P.T., A.T.C

Whether you’re a Pt, OT, doctor, nurse, or patient, you’ll receive a wealth of information on this ingenious technique, perfected from his 30 years of experience.

Saturday, July 22, 1:00–2:00pm

enrichment and family sessions

� � � � �  Caregiver Tips

� Gary Hegler

�  Many EDS patients forget that when you’re diagnosed with EDS, your partner has also been

� diagnosed with this disorder. In fact, sometimes the caregiver gets the worst deal. Learn

�  some ways to make your relationship work and ways to alleviate stress on both parties.

�  Friday, July 21, 9:00–10:30pm

� � � � �  Social Security Disability Process

Social Security Administrator

Frustrated about the disability process? This session will give you a step-by-step process on how to fill out the required forms and explains what the government needs to determine if you are eligible for disability payments. Disability lawyers are also on site to answer your questions and concerns.

Friday, July 21, 9:00–10:30am

� � � � �  Kid’s Corner

TBA

� This session helps kids understand EDS and how it affects him or others in the family. It’s� � � �  also a time for kids to talk frankly on how EDS has affected their life.

� � � � �  Improving Your Quality of Life

Josh Rosenheck

� Many EDS patients have never had the opportunity to just talk to another patient, no less a VEDS patient who has learned to improve the quality of his life and now wants to help you do the same. Bring your questions, concerns, and issues to this session.

Friday, July 21, 2:00–3:00pm and Friday, July 21, 5:15–6:00pm

� � � � �  Sit and Fit

Pi-Lien Feng, Certified Body Recall Instructor

� Many EDS Patients can’t exercise strenuously, however, they still need to keep good muscle tone and to improve lung capacity. And you can do that by sitting in a chair––even in front of the TV. And with a ball, scarve, and bean bag, you love exercise time.

Friday, July 21, 3:15–4:15pm

� � � � �  Diet and Nutrition

� � � � � � � � � � � � Pi-Lien Feng, BA, Home Economics, Taiwan

� Diet and Nutrition play a major part in keeping a patient healthy. Learn how you can cook balanced meals as suggested by the USDA guidelines. And they won’t be boring meals. In fact, Ms. Feng’s exciting recipes can be found in her book, Eating and Living Healthy, to be published in December 2006.

Friday, July 21, 4:15–5:00pm

� � � � �  Chiropractor Tips and Holistic Medicine

� Michael Prioux, DO

Since there aren’t too many new treatments out there for the EDS patient, many have turned to complementary treatments, including those performed by chiropractors and holistic medicine practitioners. And although these methods aren’t a substitute for more orthodox medical treatments , they can greatly enhance your quality of life. Just ask me.

Friday, July 21, 4:15–5:00pm and Friday, July 21, 5:15–6:00pm

interactive sessions

enrichment and family sessions

� � � � �  Caregiver Tips

� Gary Hegler

�  Many EDS patients forget that when you’re diagnosed with EDS, your partner has also been

� diagnosed with this disorder. In fact, sometimes the caregiver gets the worst deal. Learn

�  some ways to make your relationship work and ways to alleviate stress on both parties.

�  Friday, July 21, 9:00–10:30pm

� � � � �  Social Security Disability Process

Social Security Administrator

Frustrated about the disability process? This session will give you a step-by-step process on how to fill out the required forms and explains what the government needs to determine if you are eligible for disability payments. Disability lawyers are also on site to answer your questions and concerns.

Friday, July 21, 9:00–10:30am

� � � � �  Kid’s Corner

TBA

� This session helps kids understand EDS and how it affects him or others in the family. It’s� � � �  also a time for kids to talk frankly on how EDS has affected their life.

� � � � �  Improving Your Quality of Life

Josh Rosenheck

� Many EDS patients have never had the opportunity to just talk to another patient, no less a VEDS patient who has learned to improve the quality of his life and now wants to help you do the same. Bring your questions, concerns, and issues to this session.

Friday, July 21, 2:00–3:00pm and Friday, July 21, 5:15–6:00pm

� � � � �  Sit and Fit

Pi-Lien Feng, Certified Body Recall Instructor

� Many EDS Patients can’t exercise strenuously, however, they still need to keep good muscle tone and to improve lung capacity. And you can do that by sitting in a chair––even in front of the TV. And with a ball, scarve, and bean bag, you love exercise time.

Friday, July 21, 3:15–4:15pm

� � � � �  Diet and Nutrition

� � � � � � � � � � � � Pi-Lien Feng, BA, Home Economics, Taiwan

� Diet and Nutrition play a major part in keeping a patient healthy. Learn how you can cook balanced meals as suggested by the USDA guidelines. And they won’t be boring meals. In fact, Ms. Feng’s exciting recipes can be found in her book, Eating and Living Healthy, to be published in December 2006.

Friday, July 21, 4:15–5:00pm

� � � � �  Chiropractor Tips and Holistic Medicine

� Michael Prioux, DO

Since there aren’t too many new treatments out there for the EDS patient, many have turned to complementary treatments, including those performed by chiropractors and holistic medicine practitioners. And although these methods aren’t a substitute for more orthodox medical treatments , they can greatly enhance your quality of life. Just ask me.

Friday, July 21, 4:15–5:00pm and Friday, July 21, 5:15–6:00pm

interactive sessions

enrichment and family sessions

� � � � �  Caregiver Tips

� Gary Hegler

�  Many EDS patients forget that when you’re diagnosed with EDS, your partner has also been

� diagnosed with this disorder. In fact, sometimes the caregiver gets the worst deal. Learn

�  some ways to make your relationship work and ways to alleviate stress on both parties.

�  Friday, July 21, 9:00–10:30pm

� � � � �  Social Security Disability Process

Social Security Administrator

Frustrated about the disability process? This session will give you a step-by-step process on how to fill out the required forms and explains what the government needs to determine if you are eligible for disability payments. Disability lawyers are also on site to answer your questions and concerns.

Friday, July 21, 9:00–10:30am

� � � � �  Kid’s Corner

TBA

� This session helps kids understand EDS and how it affects him or others in the family. It’s� � � �  also a time for kids to talk frankly on how EDS has affected their life.

� � � � �  Improving Your Quality of Life

Josh Rosenheck

� Many EDS patients have never had the opportunity to just talk to another patient, no less a VEDS patient who has learned to improve the quality of his life and now wants to help you do the same. Bring your questions, concerns, and issues to this session.

Friday, July 21, 2:00–3:00pm and Friday, July 21, 5:15–6:00pm

� � � � �  Sit and Fit

Pi-Lien Feng, Certified Body Recall Instructor

� Many EDS Patients can’t exercise strenuously, however, they still need to keep good muscle tone and to improve lung capacity. And you can do that by sitting in a chair––even in front of the TV. And with a ball, scarve, and bean bag, you love exercise time.

Friday, July 21, 3:15–4:15pm

� � � � �  Diet and Nutrition

� � � � � � � � � � � � Pi-Lien Feng, BA, Home Economics, Taiwan

� Diet and Nutrition play a major part in keeping a patient healthy. Learn how you can cook balanced meals as suggested by the USDA guidelines. And they won’t be boring meals. In fact, Ms. Feng’s exciting recipes can be found in her book, Eating and Living Healthy, to be published in December 2006.

Friday, July 21, 4:15–5:00pm

� � � � �  Chiropractor Tips and Holistic Medicine

� Michael Prioux, DO

Since there aren’t too many new treatments out there for the EDS patient, many have turned to complementary treatments, including those performed by chiropractors and holistic medicine practitioners. And although these methods aren’t a substitute for more orthodox medical treatments , they can greatly enhance your quality of life. Just ask me.

Friday, July 21, 4:15–5:00pm and Friday, July 21, 5:15–6:00pm

interactive sessions

enrichment and family sessions

� � � � �  Caregiver Tips

� Gary Hegler

�  Many EDS patients forget that when you’re diagnosed with EDS, your partner has also been

� diagnosed with this disorder. In fact, sometimes the caregiver gets the worst deal. Learn

�  some ways to make your relationship work and ways to alleviate stress on both parties.

�  Friday, July 21, 9:00–10:30pm

� � � � �  Social Security Disability Process

Social Security Administrator

Frustrated about the disability process? This session will give you a step-by-step process on how to fill out the required forms and explains what the government needs to determine if you are eligible for disability payments. Disability lawyers are also on site to answer your questions and concerns.

Friday, July 21, 9:00–10:30am

� � � � �  Kid’s Corner

TBA

� This session helps kids understand EDS and how it affects him or others in the family. It’s� � � �  also a time for kids to talk frankly on how EDS has affected their life.

� � � � �  Improving Your Quality of Life

Josh Rosenheck

� Many EDS patients have never had the opportunity to just talk to another patient, no less a VEDS patient who has learned to improve the quality of his life and now wants to help you do the same. Bring your questions, concerns, and issues to this session.

Friday, July 21, 2:00–3:00pm and Friday, July 21, 5:15–6:00pm

� � � � �  Sit and Fit

Pi-Lien Feng, Certified Body Recall Instructor

� Many EDS Patients can’t exercise strenuously, however, they still need to keep good muscle tone and to improve lung capacity. And you can do that by sitting in a chair––even in front of the TV. And with a ball, scarve, and bean bag, you love exercise time.

Friday, July 21, 3:15–4:15pm

� � � � �  Diet and Nutrition

� � � � � � � � � � � � Pi-Lien Feng, BA, Home Economics, Taiwan

� Diet and Nutrition play a major part in keeping a patient healthy. Learn how you can cook balanced meals as suggested by the USDA guidelines. And they won’t be boring meals. In fact, Ms. Feng’s exciting recipes can be found in her book, Eating and Living Healthy, to be published in December 2006.

Friday, July 21, 4:15–5:00pm

� � � � �  Chiropractor Tips and Holistic Medicine

� Michael Prioux, DO

Since there aren’t too many new treatments out there for the EDS patient, many have turned to complementary treatments, including those performed by chiropractors and holistic medicine practitioners. And although these methods aren’t a substitute for more orthodox medical treatments , they can greatly enhance your quality of life. Just ask me.

Friday, July 21, 4:15–5:00pm and Friday, July 21, 5:15–6:00pm

interactive sessions

enrichment and family sessions

� � � � �  Caregiver Tips

� Gary Hegler

�  Many EDS patients forget that when you’re diagnosed with EDS, your partner has also been

� diagnosed with this disorder. In fact, sometimes the caregiver gets the worst deal. Learn

�  some ways to make your relationship work and ways to alleviate stress on both parties.

�  Friday, July 21, 9:00–10:30pm

� � � � �  Social Security Disability Process

Social Security Administrator

Frustrated about the disability process? This session will give you a step-by-step process on how to fill out the required forms and explains what the government needs to determine if you are eligible for disability payments. Disability lawyers are also on site to answer your questions and concerns.

Friday, July 21, 9:00–10:30am

� � � � �  Kid’s Corner

TBA

� This session helps kids understand EDS and how it affects him or others in the family. It’s� � � �  also a time for kids to talk frankly on how EDS has affected their life.

� � � � �  Improving Your Quality of Life

Josh Rosenheck

� Many EDS patients have never had the opportunity to just talk to another patient, no less a VEDS patient who has learned to improve the quality of his life and now wants to help you do the same. Bring your questions, concerns, and issues to this session.

Friday, July 21, 2:00–3:00pm and Friday, July 21, 5:15–6:00pm

� � � � �  Sit and Fit

Pi-Lien Feng, Certified Body Recall Instructor

� Many EDS Patients can’t exercise strenuously, however, they still need to keep good muscle tone and to improve lung capacity. And you can do that by sitting in a chair––even in front of the TV. And with a ball, scarve, and bean bag, you love exercise time.

Friday, July 21, 3:15–4:15pm

� � � � �  Diet and Nutrition

� � � � � � � � � � � � Pi-Lien Feng, BA, Home Economics, Taiwan

� Diet and Nutrition play a major part in keeping a patient healthy. Learn how you can cook balanced meals as suggested by the USDA guidelines. And they won’t be boring meals. In fact, Ms. Feng’s exciting recipes can be found in her book, Eating and Living Healthy, to be published in December 2006.

Friday, July 21, 4:15–5:00pm

� � � � �  Chiropractor Tips and Holistic Medicine

� Michael Prioux, DO

Since there aren’t too many new treatments out there for the EDS patient, many have turned to complementary treatments, including those performed by chiropractors and holistic medicine practitioners. And although these methods aren’t a substitute for more orthodox medical treatments , they can greatly enhance your quality of life. Just ask me.

Friday, July 21, 4:15–5:00pm and Friday, July 21, 5:15–6:00pm

interactive sessions

enrichment and family sessions

� � � � �  Caregiver Tips

� Gary Hegler

�  Many EDS patients forget that when you’re diagnosed with EDS, your partner has also been

� diagnosed with this disorder. In fact, sometimes the caregiver gets the worst deal. Learn

�  some ways to make your relationship work and ways to alleviate stress on both parties.

�  Friday, July 21, 9:00–10:30pm

� � � � �  Social Security Disability Process

Social Security Administrator

Frustrated about the disability process? This session will give you a step-by-step process on how to fill out the required forms and explains what the government needs to determine if you are eligible for disability payments. Disability lawyers are also on site to answer your questions and concerns.

Friday, July 21, 9:00–10:30am

� � � � �  Kid’s Corner

TBA

� This session helps kids understand EDS and how it affects him or others in the family. It’s� � � �  also a time for kids to talk frankly on how EDS has affected their life.

� � � � �  Improving Your Quality of Life

Josh Rosenheck

� Many EDS patients have never had the opportunity to just talk to another patient, no less a VEDS patient who has learned to improve the quality of his life and now wants to help you do the same. Bring your questions, concerns, and issues to this session.

Friday, July 21, 2:00–3:00pm and Friday, July 21, 5:15–6:00pm

� � � � �  Sit and Fit

Pi-Lien Feng, Certified Body Recall Instructor

� Many EDS Patients can’t exercise strenuously, however, they still need to keep good muscle tone and to improve lung capacity. And you can do that by sitting in a chair––even in front of the TV. And with a ball, scarve, and bean bag, you love exercise time.

Friday, July 21, 3:15–4:15pm

� � � � �  Diet and Nutrition

� � � � � � � � � � � � Pi-Lien Feng, BA, Home Economics, Taiwan

� Diet and Nutrition play a major part in keeping a patient healthy. Learn how you can cook balanced meals as suggested by the USDA guidelines. And they won’t be boring meals. In fact, Ms. Feng’s exciting recipes can be found in her book, Eating and Living Healthy, to be published in December 2006.

Friday, July 21, 4:15–5:00pm

� � � � �  Chiropractor Tips and Holistic Medicine

� Michael Prioux, DO

Since there aren’t too many new treatments out there for the EDS patient, many have turned to complementary treatments, including those performed by chiropractors and holistic medicine practitioners. And although these methods aren’t a substitute for more orthodox medical treatments , they can greatly enhance your quality of life. Just ask me.

Friday, July 21, 4:15–5:00pm and Friday, July 21, 5:15–6:00pm

interactive sessions

enrichment and family sessions

� � � � �  Caregiver Tips

� Gary Hegler

�  Many EDS patients forget that when you’re diagnosed with EDS, your partner has also been

� diagnosed with this disorder. In fact, sometimes the caregiver gets the worst deal. Learn

�  some ways to make your relationship work and ways to alleviate stress on both parties.

�  Friday, July 21, 9:00–10:30pm

� � � � �  Social Security Disability Process

Social Security Administrator

Frustrated about the disability process? This session will give you a step-by-step process on how to fill out the required forms and explains what the government needs to determine if you are eligible for disability payments. Disability lawyers are also on site to answer your questions and concerns.

Friday, July 21, 9:00–10:30am

� � � � �  Kid’s Corner

TBA

� This session helps kids understand EDS and how it affects him or others in the family. It’s� � � �  also a time for kids to talk frankly on how EDS has affected their life.

� � � � �  Improving Your Quality of Life

Josh Rosenheck

� Many EDS patients have never had the opportunity to just talk to another patient, no less a VEDS patient who has learned to improve the quality of his life and now wants to help you do the same. Bring your questions, concerns, and issues to this session.

Friday, July 21, 2:00–3:00pm and Friday, July 21, 5:15–6:00pm

� � � � �  Sit and Fit

Pi-Lien Feng, Certified Body Recall Instructor

� Many EDS Patients can’t exercise strenuously, however, they still need to keep good muscle tone and to improve lung capacity. And you can do that by sitting in a chair––even in front of the TV. And with a ball, scarve, and bean bag, you love exercise time.

Friday, July 21, 3:15–4:15pm

� � � � �  Diet and Nutrition

� � � � � � � � � � � � Pi-Lien Feng, BA, Home Economics, Taiwan

� Diet and Nutrition play a major part in keeping a patient healthy. Learn how you can cook balanced meals as suggested by the USDA guidelines. And they won’t be boring meals. In fact, Ms. Feng’s exciting recipes can be found in her book, Eating and Living Healthy, to be published in December 2006.

Friday, July 21, 4:15–5:00pm

� � � � �  Chiropractor Tips and Holistic Medicine

� Michael Prioux, DO

Since there aren’t too many new treatments out there for the EDS patient, many have turned to complementary treatments, including those performed by chiropractors and holistic medicine practitioners. And although these methods aren’t a substitute for more orthodox medical treatments , they can greatly enhance your quality of life. Just ask me.

Friday, July 21, 4:15–5:00pm and Friday, July 21, 5:15–6:00pm

interactive sessions

� � � � �  Meet the Patients

A Panel of EDS Patients

Whether you’re a doctor, Pt, OT, nurse, or patient, you’ll really benefit from this opportunity to see patients afflicted with different types of EDS. Although we stress that patients shouldn’t perform circus acts, we’ll make an exception this time. Best of all, you can ask panel members any questions you’ve been chomping at the bit to ask.

Friday, July 21, 2:00–3:00pm

� � � � �  Ask the Doctors

A Panel of Physicians

This session continues to be the most popular session at every conference. After all, when can you ask doctors any question you want and not receive a bill? Be sure to get here early before all seats are taken. And be sure to prioritize your questions. Note: There will be a different panel of physicians each day. And, all you doctors who have come, can even ask the physician panel some tough questions.

Friday, July 21, 3:15–4:30pm and Saturday, July 22, 11:00am–12:00noon

� � � � �  Physicians Round Table (sorry, docs only)

This prestigious session has been added this year.�  Physicians from all disciplines are encouraged to attend. And in a relaxed atmosphere, you can share experiences, develop networking contacts, and ask those in-depth questions which the normal patient wouldn’t understand. And since dinner is on your own tonight, you might want to continue the session over dinner. Light snacks are provided.

� Friday, July 21, 4:45–6:00pm

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